Davis update

August 25, 2018  •  Leave a Comment

Many of you have been on the journey with us. You've followed my Facebook posts and Instagram with all the set backs and all the joys. I hope that you have celebrated with us and cried some tears of joy with us. It is now time for an update on Davis! 

We did six months of in home therapies to learn how to communicate with a non verbal child. We as a family had to learn what each grunt meant and it was a challenge but we finally got it down. We learned which clothes he liked, which shoes he liked to wear to bed, and eventually got to where we could do hand over hand to lead each other to places and things he wanted. Or sometimes just to pick up a car that was right.there! But it was a huge progress and we were thrilled!

We still have to wait for our appointment with the doctor that can put on on the right track in terms of diagnosis and treatments. (This whole process is going on two years. Seven months of that is waiting for an appointment. No joke-seven months!) In the last few months things have been a roller coaster. Some days are so full of promise and some days are full of tears and frustrations. In July we had to call 911 because he was just gone. I turned around and it was as if he had vanished. We are so lucky that our neighbors brought him back and he was unhurt. And un-phased and just as happy as could be. Me, on the other hand, I still have a touch of PTSD about it. 

In August he started his first year of Ipeeps. Most don't know what Ipeeps is unless it pertains to them, so I'll fill you in. Ipeeps is part of the ESE program just for early intervention. It is special needs preschool for three and four year olds. My middle kid went through last year for a speech delay and at year's end was reading. I am a huge supporter of early intervention because I've seen first hand how much it works. His teachers are beyond amazing. He has been in the class two weeks now and I can already see a huge difference. He is happier and more independent. We had dinner last night with family and for the first time, he engaged with people. He went up to Granddaddy and gave a hug and played with him. He went up to his aunt (who just moved back from Texas and he hasn't seen much) and he was letting her tickle him and just laughed. He didn't cry or meltdown with all the noise and he didn't cling to me. He didn't stand back watching or sit by himself. In class, he said words. He counted, named animals and made their sounds. All of this progress in two weeks. And he has a cold and missed a day!

That is our Davis update. 


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